October 2019

Working with the ICGP

Almost a year on from Eibhlín's inquest. We are still working in our daughters memory, to share her story. 

Very grateful o Minister Harris for putting is in touch with the Irish College of GP's. 

Today we will be presenting Eibhlín's story of her little lifetime while also using the opportunity to encourage communication & support around grief at the #ICGPTraineeConf2019 in Galway. 

Huge thanks to Caroline Lloyd, her invaluable friendship and amazing book "Demystifying Grief" 

Summer 2019

Patient Advocate - Our experience

We were delighted to be asked by the Department of Health to join them in working on their National Framework for Infectious Disease Control 

A great opportunity to give the patients voice of their experience of the healthcare system in Ireland. 

We looking forward to continuing to work with the team 


We also received the opportunity to work on taskforce groups with the National Women's and Infants Health Programme with the HSE regarding Learning Notices.

December 2018

Neonatal Herpes made a notifiable disease

We are pleased to update that Minister Harris signed Neonatal Herpes into law as a notifiable disease.

We do hope that with our campaign in Eibhlín's Legacy, that there will be no more Neontal Herpes deaths, and a reduction in the figure of those contracting the virus. 

We are truly happy that going forward there will be Irish statistics. Parents will no longer need to learn of those from the UK, USA & Australia. 

November 2018

Since Eibhlín's Inquest

We have had incredible support since Eibhlín's inquest. We would like to thank all the media for helping us in Eibhlín's Legacy, all print /online outlets that shared her story. Huge thanks to those who invited us to do an interview, Virgin Media news & Ireland am, RTE News, Newstalk with Pat Kenny, Cork 96fm, Adrian Kennedy Show, Highland Radio and East Cost Radio 

31st of October 2018

Eibhlín's Inquest

Eibhlín's inquest was held on Halloween day, a significant day on this journey in Eibhlín's Legacy. The perfect day, to relive Eibhlín's stressful birth, short life & sudden death. 

We would like to thank all those who were with us in court that day, all those that held us in their thoughts and prayers. Thanks to Dermot Sherlock and Justin Morahan for their help in preparing for Eibhlín's Inquest, and for Pippa Woolnough for all her support over the last (almost) 3 years, but especially on the day itself.

October 2018

Neonatal Herpes

Department of Health

Making Neonatal Herpes Notifiable


We met with the Health Protection Unit, in August 2017 and they helped initiate this part of Eibhlín’s Legacy. 


Unfortunately, it has taken longer than hoped –


The Department has recently received a draft text of the regulations and is currently in the process of clarifying a number of technical details with the Parliamentary Counsel’s Office and colleagues in the HSE.

October 2018

National Women and Infants Health Programme


Health Service Executive 

Women and Infants Health Programme

August 2017

National Women and Infants Health Programme

Following on from our successful meeting with the Department of Health, we have now secured a meeting with the National Women and Infants Health Programme, to see how they can help us to fulfill our aims in Eibhlín's memory. 

August 2017

Neonatal Herpes

We have our first meeting with the Department of Health with the aim of making Neonatal HSV a notifiable disease.


This meeting went very well and the team in the Health Protection Unit have commenced the first steps in aiming to make Neonatal HSV notifiable. 

July 2017 Update

Baby Mariana

Sadly another little baby girl Mariana from Iowa grew her angel wings after her battle with the herpes virus. 

We would like to take this opportunity to offer our condolences to her parents at this sad time, although Eibhlín & Mariana cannot be present in our lives, we hope they will have joy in heaven together. 💖

With this tragic news going worldwide, it was heartwarming to realise that Eibhlín was remembered, the Independent asked us if we would like to use this opportunity to continue raising awareness in Eibhlín's memory - 


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